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Abstract

Background: After the implementation of the deinstitutionalization policy, the role of family caregivers has grown in importance and the caring responsibilities have shifted onto their shoulders. This study sought to better understand the Thai family caregivers’ needs for readiness to care for people with psychosis.

Method: A total of 48 participants were enrolled in the study. A focus group discussion and in-depth interview were conducted with family caregivers of the people with psychosis at home, in an urban area of Chonburi province, Thailand. A content analysis approach was used to analyze the data.

Results: The findings revealed that caregivers' needs for readiness to care for people with psychosis encompassed two areas: 1) enhancing motivation to be a caregiver through encouragement, mental preparation, and community preparation, and 2) the need to be prepared and ready for psychiatric caregiving such as information, financial support, caregiving skills training, and self- stress management training.

Conclusion: This study offers a new understanding of the need for readiness in caring for people with psychosis. Moreover, healthcare providers can help provide basic information for formulating strategies to serve caregivers’ needs and enhance readiness for caring for people with psychosis.

Keywords: Family caregivers, People with psychosis, Mental health, Thailand

References

[1] Department of Mental Health. Rate of the people with psychosis: annual report [updated 2021; cited 2020 Jan 9]. Available from: http://www.dmh.go.th/report/report1.asp.

[2] Poonnotok P, Kaewmart N, Asarath T, Pratoomsri W. Making it better. J Health Res 2019;33(3):238-46. https://doi.org/10.1108/JHR-09-2018-0102.

[3] Cheng SC, Backonja U, Buck B, Monroe-DeVita M, Walsh E. Facilitating pathways to care: a qualitative study of the self reported needs and coping skills of caregivers of young adults diagnosed with early psychosis. J Psychiatr Ment Health Nurs 2020;27(4):368-79. https://doi.org/10.1111/jpm.12591.

[4] Crespo-Facorro B, Such P, Nylander AG, Madera J, Resemann HK, Worthington E, et al. The burden of disease in early schizophrenia - a systematic literature review. Curr Med Res Opin 2021;37(1):109-21. https://doi.org/10.1080/03007995.2020.1841618.

[5] Young L, Vandyk AD, Jacob JD, McPherson C, Murata L. Being parent caregivers for adult children with schizophrenia. Issues Ment Health Nurs 2019;40(4):297-303. https://doi.org/10.1080/01612840.2018.1524531.

[6] Shiraishi N, Reilly J. Positive and negative impacts of schizophrenia on family caregivers: a systematic review and qualitative meta-summary. Soc Psychiatr Psychiatr Epidemiol 2019;54(3):277-90. https://doi.org/10.1007/s00127-018-1617-8.

[7] Moudatsou M, Koukouli S, Palioka E, Pattakou G, Teleme P, Fasoi G, et al. Caring for patients with psychosis: mental health professionals' views on informal caregivers' needs. Int J Environ Res Publ Health 2021;18(6):2964. https://doi.org/10.3390/ijerph18062964.

[8] Patton MQ. Qualitative evaluation and research methods. 2nd ed. London: SAGE; 1990.

[9] Kvale S, Brinkmann S. Interviews: learning the craft of qualitative research interviewing. 2nd ed. London: Sage; 2009.

[10] Colaizzi PF. Psychological research as the phenomenologist views it. In: Valle RS, Mark K, editors. Existential phenomenological alternatives for psychology. New York: Oxford University Press; 1978. p. 48-71.

[11] National Health Security Office [NHSO]. The manual in caring for chronic psychiatric patients in community for primary health care professional [updated 2016; cited 2022 May]. Available from: https://www.nhso.go.th/files/userfiles/file/Download/.

[12] Ntsayagae EI, Poggenpoel M, Myburgh C. Experiences of family caregivers of persons living with mental illness: a meta-synthesis. Curationis 2019;42(1):e1-9. https://doi.org/10.4102/curationis.v42i1.1900.

[13] Chen L, Zhao Y, Tang J, Jin G, Liu Y, Zhao X, et al. The burden, support and needs of primary family caregivers of people experiencing schizophrenia in Beijing communities: a qualitative study. BMC Psychiatr 2019;19(1):75. https://doi.org/10.1186/s12888-019-2052-4.

[14] Stanley S, Balakrishnan S. Family caregiving in schizophrenia: do stress, social support and resilience influence life satisfaction? - a quantitative study from India. Soc Work Ment Health 2022:1-19. https://doi.org/10.1080/15332985.2022.2070051.

[15] Citrome L, Belcher E, Stacy S, Suett M, Mychaskiw M, Salinas GD. Perceived burdens and educational needs of caregivers of people with schizophrenia: results of a national survey study. Patient Prefer Adherence 2022;16:159-68. https://doi.org/10.2147/ppa.S326290.

[16] Stanley S, Balakrishnan S. Informal caregivers of people with a diagnosis of schizophrenia: determinants and predictors of resilience. J Ment Health 2021:1-8. https://doi.org/10.1080/09638237.2021.1952945.

[17] Purba J, Suttharangsee W, Chaowallit A. Effectiveness of a coaching program for family caregivers of persons with schizophrenia: a randomized controlled trial. Walailak J Sci Technol 2017;14(1):11-24.

[18] Kamil SH, Velligan DI. Caregivers of individuals with schizophrenia: who are they and what are their challenges? Curr Opin Psychiatr 2019;32(3):157-63. https://doi.org/10.1097/yco.0000000000000492.

[19] Hsiao CY, Lu HL, Tsai YF. Caregiver burden and health related quality of life among primary family caregivers of individuals with schizophrenia: a cross-sectional study. Qual Life Res 2020;29(10):2745-57. https://doi.org/10.1007/s11136-020-02518-1.

[20] Oluwoye O, Cheng SC, Fraser E, Stokes B, McDonell MG. Family experiences prior to the initiation of care for first episode psychosis: a meta-synthesis of qualitative studies. J Child Fam Stud 2020;29(9):2530-41. https://doi.org/10.1007/s10826-019-01695-z.

[21] World Health Organization [WHO]. WHO MiNDbank: more inclusiveness needed in disability and development [cited 2022 May]. Available from: https://www.mindbank.info/.

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